Research that directly improves clinical outcomes and care experiences
• Research can often be seen as an activity that is far removed from day to day clinical practice.
• Unfortunately, research is often still further removed from the aims and priorities of patients and their family/carers.
• Similarly, community leaders are currently an untapped resource in the field of developmental disorders. People in community facing roles such as teaching, or religious leaders, often support people with developmental disorders and their families well before any support or input is offered by secondary healthcare services, and so have a unique insight into issues in the system.
RADiANT aims to address this gap within its portfolio of activity. Under the research strand of our research, we will aim to complete projects which directly improve the clinical outcomes of patients, and improve the care experience for patients and family/carers, as well as staff and clinicians supporting patients in a variety of roles, including our community leaders.
As a clinical and research consortium, RADiANT is unique in that any of its members, whether that is a patient, family carer, teacher, or clinician, can submit ideas for consideration for a project. The vision is that RADiANT’s activities will be driven by our diverse members, who will help identify research priorities that affect their daily life and working practice.
As a network with a wealth of personal, clinical and academic expertise, we will support our members to contribute their ideas and priorities for research. Members can then be involved as much or as little as they want, whether that be on an advisory board for a project, or to be on the project team. Network members will work collaboratively to co-produce methodologically sound and ethical projects.
We will adopt a broad definition of research. Projects might include:
• Opinion pieces
• Case studies/series or personal “life story” accounts
• Preliminary and Pilot Studies including Service Evaluation, Clinical Audit, Benchmarking and Quality Improvement
• Randomised Controlled Trials (RCTs)
• Systematic reviews
Our initial priorities include:
• Projects that improve clinical outcomes for patients with Intellectual Disability (ID), Autism, Attention Deficit Hyperactivity Disorder (ADHD), Epilepsy (EPI) and Acquired Brain Injury (ABI).
• Benchmarking services through audits and service evaluations.
• The interface between specialist and mainstream services for people with developmental disorders and physical/mental health problems.
• Transition issues
• Development of patient and carer rated outcome measures
• Use of psychotropic medication
• Case registers in epilepsy
• Measuring the impact of delayed or missed diagnoses of developmental conditions
• Any other topics that are suggested by RADiANT members.