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Coronavirus (COVID-19), Intellectual Disability, Autism, ADHD, Epilepsy and Acquired Brain Injury

COVID-19 is an infectious disease caused by a newly discovered coronavirus (World Health Organisation, 2020). Most people infected with the COVID-19 virus will experience mild to moderate respiratory illness and recover without requiring special treatment.  However, those with underlying medical problems are more likely to develop serious illness (World Health Organisation, 2020). The list of relevant underlying medical problems can be found here.
​
People who have the conditions covered by RADiANT (Intellectual Disability, Autism, Attention Deficit Hyperactivity Disorder, Epilepsy, or Acquired Brain Injury) may be experiencing worry about how coronavirus may affect them. We have collated links to information on coronavirus and each of our RADiANT populations.

​If any of our members would like to notify us of a resource which can be added to our list, please email Verity Chester on v.chester@nhs.net. ​
Learning / Intellectual Disability

People with intellectual disabilities have been included on the list of those at risk. We have launched guidance on COVID-19 and Intellectual Disability in community and inpatient settings: 
  1. COVID-19 and People with Intellectual Disability: Guidance on Advances Planning for Treatment Escalation, Ceiling of Care, Palliative Care and End of Life. 
  2. People with intellectual disability and mental health/behavioural problems: guidance on COVID-19 for in-patient psychiatric settings
  3. People with intellectual disability and mental health/behavioural problems: guidance on COVID-19 for community settings
  4. Guidance for the Treatment and Management of COVID-19 Among People with Intellectual Disabilities.  ​
​Resource Lists
  • COVID-19 Resources - https://www.iassidd.org/covid-19-resources/?utm_medium=email&utm_campaign=website&utm_source=sendgrid.com

Easy Read Guides
  • The University of Glasgow ,with assistance from colleagues at Lancaster University , the University of Oxford and the University of Warwick, have published a series of guided self-help booklets developed to support people with mild to moderate learning/intellectual disabilities during the COVID-19 outbreak: https://www.scld.org.uk/covid-19-guided-self-help-booklet-series/  
  • Public Health England - Coronavirus (Covid-19) ​https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/874281/COVID-19_easy_read.pdf
  • mencap – Information about Coronavirus (COVID-19) - https://www.mencap.org.uk/sites/default/files/2020-03/Info%20about%20covid19%2026th%20March.pdf
  • Oxford Health NHS Foundation Trust - COVID 19: Easy Read information for people with learning disability & autism - https://www.oxfordhealth.nhs.uk/wp-content/uploads/2020/03/COVID-19_easy_read.pdf
  • Down Syndrome Association - Coronavirus (COVID-19) - https://www.downs-syndrome.org.uk/coronavirus-covid-19/
  • Books Beyond Words - Beating the Virus - https://booksbeyondwords.co.uk/downloads-shop/beating-the-virus
  • Photosymbols - Coronavirus Poster Set - https://www.photosymbols.com/blogs/news/coronavirus-poster-set 
  • Scottish Commission for Learning Disability
    • Overview Easy Read - https://www.scld.org.uk/wp-content/uploads/2020/03/Section-1-Overview-.pdf
    • Stay At Home Advice Easy Read - https://www.scld.org.uk/wp-content/uploads/2020/03/Section-3-Stay-at-home-advice-easy-read.pdf
    • Social Distancing Easy Read - https://www.scld.org.uk/wp-content/uploads/2020/03/Section-4-Social-Distancing-Easy-Read.pdf
    • Shielding Easy Read - https://www.scld.org.uk/wp-content/uploads/2020/03/Section-5.-Shielding-Easy-Read.pdf

Information for Families
  • Challenging Behaviour Foundation
    • ​Covid 19 - CBF support for families - https://www.challengingbehaviour.org.uk/cbf-articles/latest-news/guidanceforfamilies.html​
    • Coronavirus (COVID-19) information for families - https://www.challengingbehaviour.org.uk/learning-disability-assets/1coronavirusinformationforfamilies.pdf
    • Coronavirus – restrictions placed on family contact - https://www.challengingbehaviour.org.uk/learning-disability-assets/restrictionsoncontactwithfamily.pdf

Health Tools / Apps
  • NHS - Learning disabilities Apps - https://www.nhs.uk/apps-library/category/learning-disabilities/
  • NHS - Hospital passport - https://www.royalfree.nhs.uk/patients-visitors/disabled-facilities/patients-with-a-learning-disability/hospital-passport/
  • NHS- Hospital passport (download and personalize as needed for your service) - https://www.mencap.org.uk/advice-and-support/health/health-guides

​Guidance for Clinicians / Services
  • NHS England - Clinical guide for front line staff to support the management of patients with a learning disability, autism or both during the coronavirus pandemic – relevant to all clinical specialities - https://www.england.nhs.uk/coronavirus/wp-content/uploads/sites/52/2020/03/C0031_Specialty-guide_LD-and-coronavirus-v1_-24-March.pdf
  • Public Health England - COVID-19: guidance for supported living provision - https://www.gov.uk/government/publications/covid-19-residential-care-supported-living-and-home-care-guidance/covid-19-guidance-for-supported-living-provision
  • Faculty of Psychiatry of Intellectual Disability - Covid-19 and People with Intellectual Disability - https://www.rcpsych.ac.uk/docs/default-source/members/faculties/intellectual-disability/covid-19-facultypsychid.pdf?sfvrsn=86f6a7da_2
  • Royal College of Psychiatrists - Community and inpatient services - COVID-19 guidance for clinicians - https://www.rcpsych.ac.uk/about-us/responding-to-covid-19/responding-to-covid-19-guidance-for-clinicians/community-and-inpatient-services-covid-19-guidance-for-clinicians
  • Public Health England - COVID-19: Guidance for Social distancing for vulnerable people - https://www.gov.uk/government/publications/covid-19-guidance-on-social-distancing-and-for-vulnerable-people/guidance-on-social-distancing-for-everyone-in-the-uk-and-protecting-older-people-and-vulnerable-adults
  • Public Health England - COVID-19: Guidance for Shielding for the Extremely Vulnerable - https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19#what-do-we-mean-by-extremely-vulnerable
  • Public Health England - COVID-19: Investigation and initial clinical management of possible cases - https://www.gov.uk/government/publications/wuhan-novel-coronavirus-initial-investigation-of-possible-cases/investigation-and-initial-clinical-management-of-possible-cases-of-wuhan-novel-coronavirus-wn-cov-infection#action-to-take-if-inpatient-definition-is-met
  • Learning Disability and Mental Health- Resources to help well being and health - https://www.skillsforcare.org.uk/Learning-development/ongoing-learning-and-development/learning-disability/Learning-disability-and-mental-health.aspx
 
Autism
  • The Association for Child and Adolescent Mental Health - Coronavirus, and helping children with autism – Episode 4 ‘Autism, a parents guide’ with Dr. Ann Ozsivadjian and Dr. Marianna Murin https://www.acamh.org/podcasts/cornavirus-autism-a-parents-guide/
  • Autistica - Coping with the uncertainty of COVID-19 - https://www.autistica.org.uk/what-is-autism/coping-with-uncertainty
  • Autistica - Impacts of COVID-19 for autistic employees - https://www.autistica.org.uk/news/impacts-of-covid-19-for-autistic-employees
  • Autistica - Hosting accessible online events, meetings and webinars - https://www.autistica.org.uk/what-is-autism/accessible-online-events 
  • Priory Group - How to help an autistic child during the coronavirus outbreak - https://www.priorygroup.com/blog/how-to-help-an-autistic-child-during-the-coronavirus-outbreak
  • Autistic and Unapologetic - Autism & Covid-19: How to Support Autistic People During the Coronavirus Pandemic - http://autisticandunapologetic.com/2020/03/20/autism-covid-19-how-to-support-autistic-people-during-the-coronavirus-pandemic/
  • Autism East Midlands - Autism, Anxiety and Coronavirus - https://www.autismeastmidlands.org.uk/autism-anxiety-and-coronavirus/
  • Ambitious About Autism - Uncertainty, anxiety and the Coronavirus pandemic https://www.ambitiousaboutautism.org.uk/understanding-autism/uncertainty-anxiety-and-the-coronavirus-pandemic
  • App from National Autistic Society (NAS): Brain in Hand https://www.autism.org.uk/services/education/brain-in-hand.aspx
  • Managing Anxiety- Guidance from the NAS https://www.autism.org.uk/about/behaviour/anxiety.aspx

Attention Deficit Hyperactivity Disorder
  • ADDitude - Coronavirus Crash Course for Parents: Keeping Kids with ADHD in ‘Study Mode’ While Home from School https://www.additudemag.com/webinar/coronavirus-homeschooling-parent-strategies/
  • ADDitude - ADHD Brains Working at Home: A Beginner’s Guide to Telecommuting https://www.additudemag.com/working-from-home-adhd/
 
Epilepsy
  • Epilepsy Action - Coronavirus (COVID-19) and epilepsy https://www.epilepsy.org.uk/info/daily-life/safety/coronavirus-covid-19
  • Epilepsy Society - Epilepsy And The Coronavirus https://www.epilepsysociety.org.uk/news/epilepsy-and-coronavirus-09-03-2020#.Xn9bYIj7Q2w
  • Epilepsy Foundation - Concerns About COVID-19 (Coronavirus) and Epilepsy https://www.epilepsy.com/article/2020/3/concerns-about-covid-19-coronavirus-and-epilepsy

Acquired Brain Injury
  • Headway - Coronavirus and brain injury: We’re here for you -https://www.headway.org.uk/news-and-campaigns/news/2020/coronavirus-and-brain-injury-we-re-here-for-you/

Staff Wellbeing
  • Public Health England Guidance for the public on mental health and well being https://www.gov.uk/government/publications/covid-19-guidance-for-the-public-on-mental-health-and-wellbeing/guidance-for-the-public-on-the-mental-health-and-wellbeing-aspects-of-coronavirus-covid-19
  • Managing mental health challenges faced by healthcare workers during covid-19 pandemic - https://www.bmj.com/content/368/bmj.m1211
  • We need rest, not reflection: psychological support for the medical frontline - https://www.cost-ofliving.net/we-need-rest-not-reflection-psychological-support-for-the-medical-frontline/
 
Other References
  • World Health Organisation (2020). Coronavirus - https://www.who.int/health-topics/coronavirus#tab=tab_1
  • Public Health England (2020). Guidance on social distancing for everyone in the UK -https://www.gov.uk/government/publications/covid-19-guidance-on-social-distancing-and-for-vulnerable-people/guidance-on-social-distancing-for-everyone-in-the-uk-and-protecting-older-people-and-vulnerable-adults
  • Learning Disability Wales resources - https://www.ldw.org.uk/project/coronavirus/​